• Gail Bartlett on Facebook September 4, 2011 at 6:25 pm

    I actually feel that the problem is moreso that people think that if a condition is “psychological” that it is in some way less “real”. For instance, I suffer from a variety of mental illnesses. Some of the people releasing papers that suggest M.E. is a psychological illness, not a virus, do not intend to suggest that it is in any way less serious – Although this is, at times, the conclusion drawn by the gutter press.

  • Barbara Hulme on Facebook September 4, 2011 at 6:53 pm

    The original research and conclusions via this psychosocial model is due to the payout structure of US insurance companies which pay less for MH illnesses. This plus the conclusion that anyone who has a physical illness that they do not recover from within a certain time limit must have psychosocial illness rather than physical. ME is a physical illness as are many musculoskeletal illnesses which have not resolved within the time limit suggested. There are things wrong with these ideas both for people with MH illnesses and those with physical illnesses also. If people with MH illnesses did not have the time limit imposed by the insurance companies then the insurance companies would have no vested interest in declaring physical illnesses as psychological and thus research and treatment in all areas would go down the correct paths. To see where the insurance companies are coming from – how come so much expense has been spent on trying to prove that physical conditions are mental rather than money being spent on legitimate mental health problems!!

  • Elysabeth Mccaig-scott on Facebook September 4, 2011 at 7:17 pm

    well said Barbara- it’s all arse backwards and increases the stigma even more over MH conditions.

  • Zachary Danger Martin on Facebook September 4, 2011 at 7:21 pm

    We had a Eugenics Society AFTER the war? Unfucking beleivable.

  • Barbara Hulme on Facebook September 4, 2011 at 7:27 pm

    I was sent on something called a pain management programme years ago which was for people with non-specific back pain, sciatica and various other conditions – it was presented that if you are still feeling pain there is nothing physically wrong with you – its just your nerves are over reactive so you feel pain although there is nothing wrong – same treatment of CBT, pain killers (amitryptilene) which is supposed to be good for nerve pain but is also a anti-depressant and graded exercise. They made people sign a document saying that they would not seek any further medical treatment for their condition as they realised there was nothing further that conventional treatment could do for them. It was at this point I backed out as I refused to sign the agreement and began looking at the whole set up through fresh eyes due to them wanting me to sign this. It has also been prescribed by the DWP though in a slightly different form – under the title the ‘Expert Patient Programme’.

  • Gail Bartlett on Facebook September 4, 2011 at 8:04 pm

    Thanks for the informative response. Appreciate it.

  • Joe Kane on Facebook September 4, 2011 at 8:09 pm

    Myself and others have been pointing out these welfare reforms and the WCA approach to disease and disability were pioneered first on ME sufferers –
    – the sick and disabled are no longer considered by the government from the traditional medical ethical viewpoint of sympathy and care for the patient, but purely from the ‘functional’ point of view of wether they ‘appear’ physically healthy enough to work.

    The physical disease ME along with ME sufferers have been disappeared using this approach. It was developed by the Wessely School of Psychiatry. Wessley is also the doctor who disappeared Gulf War SYndrome and GWS sufferers. It is this approach which is now being rolled out to the rest of the sick and disabled population of Britian.

    These inhuman DWP-Atos ‘functional assessment’ examinations aren’t about illness, but the appearance of illness. They are devoid of the rigours of medical science as practised in the NHS. These examinations, which aren’t ‘medicals’, mean whatever those in power want them to mean. They are devoid of all the sympathy and compassion which doctors are supposed to use when dealing with patients. Doctors have even been replaced by a piece of software called ‘LiMA’ – you can’t get any more inhuman than the DWP-Atos replacing human doctors with machines to decide on medical matters.

    The other approach the government is using to disappear the sick and disabled of Britian is in its Orwellian misuse of language. There are no sick notes anymore, only ‘fit notes’. Social security has been replaced by the Dept of Works and Pensions. No Disability Living Allowance but something called PIP. The list is endless. Disappear words which directly mention welfare, sickness and disability and soon people associated with them also start to disappear too.

  • Jane Clout September 4, 2011 at 10:14 pm

    First they came for the undeserving sick, but I said nothing, for I was healthy. Next they came for the protesters but I kept quiet, because I was ok …. When they came for me there was no-one left to cry out. To paraphrase an old lament.

  • David Wade on Facebook September 5, 2011 at 12:04 am

    They started this war a few yr ago, day centres charging more, reemploy places closing down. Its not being done “POLITICALLY” but more on civil service apparatus mechanisms which hide it a bit since theirs no NAZI PARTY in charge

  • Zachary Danger Martin on Facebook September 5, 2011 at 11:14 am

    Because the sick don’t even get a mention in the original lament.

  • MsJustice September 5, 2011 at 12:48 pm

    Just to add that a lot of people, with or without ME, wonder why we are so anti-CBT. Most of them don’t understand what CBT is for a start but more importantly, the CBT we are offered is not the same as CBT given to someone with cancer, say. CBT for ME isn’t professional like counselling. For me, it wasn’t a non-judgemental, listening therapy with respect for the client. It was delivered in a dogmatic, rigid way with no respect for a person’s experience or opinion. It is meant to change thoughts and behaviour which means that it views your current thoughts and behaviours as faulty and in need of fixing. It is brainwashing. For those who have an irrational phobia, it can be liberating but for ME, it is mental abuse.

    Here’s why: They tell you that there is no persistant virus, muscle disease or any underlying disease process and that you are deconditioned (unfit) Even the DoH don’t say this. The cause is unknown yet and there are physiological abnormalities not explainable by deconditioning.

    This means they can say by changing your habits and doing aerobic exercise, you can get well. Oh and fix the overbreathing, routine, focusing on your symptoms and sleep patterns and that will help you along. If you can do this, the DWP will argue that you’re fit to work and that is their goal. The DWP partly funded the recent PACE trial, the very first scientific trial they’ve ever funded. They fully admitted that the goal was to part of a government back to work plan in a FOI request reply.

    The roling out of CBT, Expert Patient programs and NLP trials and courses for the unemployed and those who lack confidence at local colleges, they are making brainwashing therapies acceptable to the public. They might change the name of the therapy but the goal is always the same…to trick a person into thinking differently and if the government is delivering these services, we should all be aware of how these therapies can be used.

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